Indistinguishable From Magic

(Or How The Apple Watch Saved my Life)

UPDATE:

This was originally published on “Medium” three years ago. Since then, I have remained A-Fib event-free. Deborah and I have a new golden retriever named Phoebe, I’m writing music and prose more than ever, I’m in the midst of exciting new projects, practicing trombone, and I am living my absolute best life.

Such a deal!

I love to use a quote from Sir Arthur C. Clark to describe many other things in my life. The original comes from Clark’s famous three laws found in his 1962 book “Profiles of the Future: An Inquiry into the Limits of the Possible.” The third law is: “Any sufficiently advanced technology is indistinguishable from magic.” And lawd ha’b MERCY…when it comes to affairs of the heart, modern medicine SHO-NUFF qualifies for Law #3! The following story of gratitude I believe will illustrate just why I think this to be true.

First off, there is no 100% cure for a-fib. However, with the wizardry of modern technology and the virtuoso talent of modern electrophysiologists, we can now manage the HELL outa this deadly condition. Read on…

In 2006, I started to notice a strange fluttering sensation in my chest. It certainly didn’t feel like any description of a heart attack that I’d ever heard of… just a disconcerting feeling that there was a fish in the vicinity of heart that wanted out…NOW! Being a big fan of Ridley Scott’s film “Alien,” I didn’t want to take any chances (did I remember any encounters with a strange pod that shot forth a spidery crab-like creature that grabbed on to my face and planted an alien entity into my gut? Hmmm…I think I would have remembered that) …I decided to ask my doctor about it. After many preliminary tests and a battery of various heart stress exams, he determined that it was probably acid reflux. I would learn much later that acid reflux or GERD is the default diagnosis for much of what ails a person as they enter midlife. At least this was the case until the advent of amazing devices (that I’m SURE Arthur C. Clark would have loved) but, no spoilers…

As the years went on, the alien fluttering continued and started to be accompanied by what felt like my heart racing as if I had just participated in a one hundred yard sprint and then just stopped without a warm down ( I had read about exercise, but admittedly wasn’t a practitioner. Unless one counts playing high “F”s on trombone as exercise)

Curiouser and curiouser…

It should also be mentioned that I was quite a “rolling stone” throughout this period of my life with first a career move, then a series of relocations as a result of a divorce. Hard to keep medical records consistent when you migrate from state-to-state. But, throughout it all, there was a very real concern (the chest alien had a habit of reminding me often) that there was more going on here than an upset stomach.

While living in Texas for seven years, I was able to mount a very thorough campaign to test my heart for all kinds of things…except it turns out, the thing that was wrong with it. No severe blockage (just the normal amount brought on by high cholesterol and chocolate cake for breakfast for years …but that is a story for another time…) no sign of any heart attacks or heart disease. Just the occasional arrhythmia on an EKG here-and-there (insert ominous Hans Zimmer cue here) At the end of this series of testing, my doctor pronounced my heart to be healthy (he forgot, however, to send the Ridley Scott creature living in my chest and having big fun with some kind of Olympic floor gymnastics program a memo on this prognosis) I have now learned that this misdiagnosis was the result of dealing with the muscles and physical attributes of the heart and not the electrical intricacies. What-WHAT? Fear not, read on…

Next up was another career move that took me to Denver for seven years. During this time my new set of Docs (including a cardiologist and G.I. specialist) decided that I indeed was suffering from a form of GERD (gastroesophageal reflux disease, or the condition that occurs with a constant back-flow of acid from the stomach to the esophagus…reminds me of drivers that I encounter actually) but this time around a new wrinkle was added: the very creative G.I. person said that I had an esophagus spasm, and even “saw” said movement on a barium test scan. Well, at least now we had something to describe the alien (to which the true nature of the beast in my chest did a fair imitation of Mr. Burns on The Simpsons saying “Excellent!”) The meds prescribed for this condition seemed to have a fairly good effect at first, but then just began to fade away.

Could nobody rid me of this dreadful viscera-flopping demon!?

Fast forward to yet another move, this one brought on by a major divorce that saw me deciding to ride out COVID 1.0 in a beautiful mountain community between Taos and Angel Fire New Mexico. I’d always had a Jeremiah Johnson cabin-life persona as a bucket list desire, so if the world was ending due to a wave of deadly virus, why not? I was able to continue teaching at the University of Denver via Zoom and I was living the mountain dream, 8500 feet up in a deeeluxe cabin in the sky! The only problem… my extraterrestrial flipping demon child came with me, and was getting WORSE! Now, along with the unsettling quiver (calling it a “quiver” is being kind, more like a Mike Tyson vs Joe Frazier training session and hoedown inside my upper body cavity) a new set of symptoms were occurring: high blood pressure, sweats, trouble breathing, and just a general dreadful feeling of “This is the BIG one, Elizabeth! I’m comin’ to join ya”

(See an excerpt from the classic 1970s sitcom “Sanford and Son” below to see me during an actual a-fib event…)

One day while sitting in front of a roaring fire during a thrilling snowstorm in the mountains, I noticed an interesting app on my newly-purchased Apple Watch. It was an “ECG” reading app that could detect what it called “Atrial Fibrillation.” Hello what’s this? I thought. “D’OH” said the beast in my chest. I gave it a try and almost instantly the watch said that I was having an “a-fib” attack. I tried it three more times and each time, same result. This info was then recorded on the health app on my iPhone.

Now we are moving boldly into Arthur C. Clark territory…

After (you guessed it) yet ANOTHER move, this time to Chicago upon my happy graduation (“retirement”) from academic life and arrival into full-time deliriously delightful creative mode, I put together a new medical team and began asking them seriously about a-fib. My new cardiologist said something along the lines of “Well, if we have no EKG records of an a-fib event, we can’t do anything about it. I’d like to recommend a mobile device that you could use to keep track of things.” Grasping at my last straw (albeit a trendy frontal cortex extension miracle device) I said “My watch and phone recorded several a-fib events, does that count?” to which the doctor said, “Really? Let’s have a look.” After glancing at my phone records, this wonderful man said “Yep, you have a-fib. Let’s get that fixed!”

And, uh…WOW!?

So, there you have it. Upon that diagnosis, I was refereed to an electrophysiologist who specializes in treating the heart via an out-patient procedure that rewires the electrical charges and does away with a-fib. (Calling Dr. Arthur C. Clark!) I signed up for that right away as even my new a-fib meds weren’t able to stop my racing heart (70bpm to 170 to 90 to 120 all within a few seconds and lasting for HOURS…it ain’t pretty folks) The magic process is called a catheter ablation, or in my case an RF (radio frequency) catheter ablation. Here is a link that will take you behind the walls at Disneyland to learn just what that bit of wizardry is: Arthur C Clark’s Miracle Cure. And while we’re at it, here is a nice description of just what a-fib is: The Wiesty Chest Demon.

On November 30, 2021 in Highland Park, Illinois a valiant electro-knight named Dr. Alex Su Ro went into my heart via a major artery in my groin (insert Jerry Lewis “Hey Lady” cue here) and slayed the dragon in my chest. At least, that is my hope in these early days of recovery. I’m told that it takes three months to be sure, but so far I have been “demon event free” and beginning to feel better than I have since, well since 2006. (UPDATE: AS happily mentioned above, it is now almost three years later…NO A_FIB!)  I had an appointment recently with the magnificent Nurse Practitioner Marcela Goldsmith who explained everything at a level that a jazz-rock trombonist could understand. I was also treated to a short visit with the great Knight himself Dr. Ro. I told the good doctor that he had touched my heart as nobody else ever had. (I think I was a big hit!) But seriously, it was true joy to thank these two personifications of the Hippocratic Oath for all they have done and are doing for me. The work they do is precious indeed. Please remember to thank each and every one of your care-givers folks! They are the ones who are truly deserving of the popular adage “Thank you for your service.”

As mentioned above in the update, since this wonderful life-changing ablation, I have been sorting out the epic world of graduation (some call this “retirement”), being deliciously busy with everything that I love to do, and spending copious amounts of quality time with the love of my life, Deborah, and the love of our lives Phoebe. 

At this point, ladies and gentlemen, life is very, very grand indeed!

Thank you Sir Arthur C. Clark and your Electro Knights of the Heart-Shaped Table!

Epilogue:

A-fib can cause some pretty serious conditions, such as a massive stroke that can also lead to death. Not good. If you have even the suggestion of any of the symptoms mentioned in my epic tale of self-discovery and physical reclamation, please get it checked out right away! In fact, even though I certainly don’t get any money as an endorser of said (Hmmm…might be a good idea Apple, whatchathink?) I HIGHLY recommend that you pick up an Apple watch (the blue tooth version that comes with the ECG app) and an iPhone. Such technology is indeed indistinguishable from magic, and just might save your life.

 

2 thoughts on “Indistinguishable From Magic”

  1. Mine was triggered when I nearly had my car stolen in 2022. I thought it was a massive anxiety attack, but it evidently triggered it. I got hauled off the stage and to the hospital right at the beginning of a concert during the second tune because I thought I was going out. Scary time. At first I thought it was heat stroke. I had the symptoms. But when something “doesn’t feel right” it’s usually related to your heart. But I’ve been on medication and ever since and it’s under control. I have a Kardia app and the Kardia device where you can do your EKG anytime, anywhere. And you can share those results with your doctor.

    I’ve only been tachycardic twice since I was diagnosed. Once, when Covid was taking a hold of me, that was the first clue. And when the doctor came into the ER to see how I was doing, he was wearing an N 95 cup mask over his face, the heavy duty one. That was my clue that a virus might be working on me, guess which one? The next day I took my home test and sure enough it was my turn. But that’s the only time I’ve ever had it. And it turned out to be nothing but extreme fatigue and I wasn’t hungry. And I can’t have the shots because my doctor advised me against them. Hence, I haven’t played a Broadway show since because of B’way’s mandates, even tho people still got sick after the shots. And I love playing Broadway shows because it’s steady work and I enjoy playing them.

    Best wishes, Steve! Good thing you got diagnosed and it’s being treated!

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